Monday, May 30, 2011

Dinner and Poker Tournament

We're 10 days away from doing a fundraiser for Lucas!  This will be another Dinner/Poker Tournament and we're going to have a blast as we did before!

Hope you can make it!!

7:07 pm mdt 

Friday, December 10, 2010

December Already??

Well hello everyone, can you believe it's December already?  Happy Holidaze to you all!!

Well we are amazed at the progress of Lucas.  Between the two primary therapies Lucas gets right now he has made some huge leaps.  He continues to eat well by spoon, his breathing is great, his movements are more fluid and controlled, and his reflux remains a memory ;-)

As far as the Non-Profit organization goes we are moving forward toward doing a couple of different live fun filled Fund raisers.

We are gearing up for those in early 2011 and I can't wait to share more details.

In the mean time it's prime running season for me over here in Arizona.  I'm so happy to be on the streets running a gazillion miles in preparationg of running for our son and our Charitable organization again this year. 

The Tucson Marathon is first on the list on Dec 12th.  Then I'll Run for our Son again on Jan 16th at the Rock N Roll Arizona Marathon.  I'll be adorning the beautiful HelpLucasMove.com running shirt and hope to continue the quest of bringing recognition to the site and to our effort.

So look for updates coming in the next couple of months for live events in Arizona!

Thanks so much for reading!

God bless and have a wonderful holiday season!!

Ed, Lisa, Caitlin, and Lucas

9:34 am mst 

Thursday, August 12, 2010

Been a long time since I've posted!

Well it's summertime here in Arizona and that means HOT HOT HOT days.  But we love it and as the kiddies go back to school we really love to see Lucas doing so well with the heat.  He used to hate the heat and reflux badly .  We are currently in the process of administering a Homeopathic Remedy called G-Therapy, and that has made Lucas a different boy!  G-Therapy is a pioneering treatment for a variety of Neurodevelopmental disorders and neurological conditions including cerebral palsy, mental subnormality, austism, Down's Syndrome, global delays, etc as well as a range of other chronic conditions.  It's been about 3 months now since we started this therapy but the changes are awesome.

Lucas no longer is on any Steroid use.  He's also eliminated all of his GERD (Reflux)  Which means no more puking!!  He's Eating by spoon now for the first time ever in 6+ years.  We are also lowering other meds he's been on since birth that we don't believe he needs any longer.  Lucas is way more cognitively aware now which is so awesome to see.  He's more verbal, more fluid in movements, and has more control in his actions.  

We just completed a weeks worth of Anat Baniel Method therapy in California also.  This movement therapy helps his brain recognize ways to improve movement.  He came home from this intensive week with a better posture and I will continue to work with him so that he keeps moving forward.

Thanks again for the prayers, donations, and good thoughts you send us.  we need them dearly as we continue this journey.  God bless

1:06 pm mdt 

Tuesday, April 13, 2010

G-Therapy Begins

Well the day has finally arrived where we start G-Therapy.  This is a Homeopathic remedy given internally which was developed in India for the purpose of helping children with Neuorlogical challenges.  We actually started Monday April 12th and suprisingly Lucas took the therapy like a champ.  No gagging, vomiting, or rejection to it.  We are highly encouraged by this since introducing any foods has been an ongoing challenge.  We will report over the next several month as to the results.  Thanks again for all of your prayers!

Ed and Lisa

4:32 pm mdt 

Tuesday, April 6, 2010

Our Trip to Florida for Hyperbaric Oxygen Therapy

Well we're finally back!  It was a long 5 weeks but the results Lucas got were worth it.

We did an intensive round of 40 Hyperbaric Oxygen Therapy treatments.  What this means is that we go into a small portable chamber for an hour with Lucas and the pressure is raised to equal being that of being about 10 feet under water.  It's also like when you fly on a plane and your ears pop from the pressure in the cabin.  We also strap on a canula to Lucas' nose and pump in a hugh dose of pure oxygen.  The result is a large amount of Oxygen being pumped through the blood and ultimately to the brain.  The results seen are that the transmitters and receptors in the brain awaken with this dose of Oxygen and pressure combination.  Then the brain can continue to learn from the renewed life into the parts that may have been inactive or damaged.  So we could continue to see improvements for several months after our sessions.

It didn't take long for us to see some changes however.  The biggest ones are in Lucas' awareness.  He is more responsive to commands.  We tell him once now and he moves or responds.  Usually it takes a second for him to think about things and then he responds.  He's moving a bit better and more fluid also.  Crawling is a breeze now for him and when upright his walking seems to be more intentional and with flatter feet.  Many times kids with CP "toe" walk but he seems to not have too much problem with this once he's comfortable being upright.  This gives us great hope for him to walk someday on his own.  Currently we practice on a walker or against furniture.  Lastly, his vision seems to be more clear.  Focusing on things better and tracking things as they pass by clearly shows us he's using his vision more and not relying on his other senses.  Small changes for now but we hope to see these things continue to improve.

Overall the trip was a success.  We also stayed with my mother and saw family while near the treatment facility.  Then we were also able to stay with Lisa's parents for a week and some weekends.  Making all grandparents very happy to spend time with the twins.  Caitlin was a very patient 6 yr old with all of this and we are so blessed with her.  

Now as we move forward Lucas will start the G-Therapy remedy we received from India.  It's a Homeopathic remedy for kids with Nuerological challenges.  We look forward to getting this started.  We also will raise funds to rent our own Hyperbaric Oxygen chamber in the future as we hope to continue that form of therapy.  Coming up in May I travel to California again to continue my training on the Anat Baniel Method for Lucas and together these therapies will help my son be all he can be :)

Thanks for all of your continued support and God Bless!

 Ed, Lisa, Caitlin, and Lucas

11:41 pm mdt 

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